Professor Helen Cooper

Professor, Community and Child Health

I am a Professor of Community and Child Health in the Faculty of Health and Social Care. I have a professional background in community nursing including health visiting, with specialist experience in interprofessional education, and the management of people with diabetes including adults, children and young people.

I began my career with nursing studiez at Manchester University where I gained a degree in Nursing and professional registration as a general nurse, health visitor, and district nurse. I completed my PhD in 2001 from the University of Liverpool where I combined my interests in diabetes and patient and professional education.

I moved to the University of Chester in 2008, following the offer of a Chair.

Qualifications

PhD, BNurs, PGCHE, RGN, RHV, DN cert., ENB 928.

Fellow of the Higher Education Academy

Honorary Fellow, University of Liverpool

Registered with the  Nursing and Midwifery Council

Professional member of Diabetes UK

Teaching

After becoming a Nurse Tutor at Liverpool University in 1999, I became a Lecturer in Health Care Education in 2001 where my prime role was to teach medical students, and in 2005, I became Director of Interprofessional Education within the Department of Primary Care, Faculty of Medicine.

In 2005, I also took up the post of Programme Leader within Nursing at Liverpool, running the MSc in Advanced Clinical Practice.

I am current responsible for the supervision of PhD students at the University of Chester.

Research

I have been successful in obtaining funding for a number of research studies. My work has raised the profile of user and carer education, questioned its traditional linear focus on clinically-based end points, and has had wide ranging impact on the use of theory and combined research methods.

My research centres on education, specifically patient, carer and interprofessional education (IPE). My work began with a PhD study of patient education for people with Type 2 diabetes. I then completed a 4 year programme of studies encompassing design, implementation and evaluation of an evidence-based interprofessional education intervention which included e-learning, portfolios, and workshops facilitated by specially trained practitioners and service users.

Findings provided evidence for the need to start IPE early in students' training thus integrating the evolution of role development into the evolution of ‘other' role awareness. It highlighted the value of collaborative working which has now become a practical reality in all my work. The study also demonstrated the relevance of Complexity Science, doing justice to the dynamics through which the numerous determinants of joint working and learning are related.

This work led to a developing interest in Complexity as a new methodological paradigm for integrating the natural and behavioural sciences, leading to research work exploring Complexity as a broader scientific and philosophical framework for understanding the nature of diabetes and its relationship to patients, carers and health professionals.

Following successful application for funding from Diabetes UK in 2008, my current research programme is focused on education for adolescents living with diabetes. This work has developed, psychometrically tested and evaluated a novel technology-based needs assessment tool, and also extended knowledge on methodologies for researching these types of interventions. Supporting this work is a systematic review of educational technology use with young people living with diabetes (Cooper et al, 2009), and a PhD qualitative study of the lived experiences of adolescents with diabetes and their carers (Spencer, 2012).

Alongside this, I have also supervised a student from Serbia (on a UK Government Chevening scholarship) who explored the relationships between Complexity Science and Action Research and whether a blend of these two conceptual frameworks can provide a methodology for future research. During this time, I made a successful joint bid with Professor Robert Geyer, from Lancaster University's Department of Politics and International Relations, to secure funding from the European Science Foundation to host an international Exploratory Workshops. Spread over three days, the workshops explored different themes relating to health and Complexity thinking.

As a result of work completed for the Department of Health and Diabetes UK, I was invited to attend the UK Annual Parliamentary receptions in June 2006 and April 2015 and the work has won two awards:

Education Award: Diabetes UK Annual Professional Conference, 2007

Paper of the Day Award (highly commended): Royal College of Nursing International Research Conference, 201

 

Through my research work, I have also established a number of interprofessional collaborations with Alder Hey Children's Hospital, Liverpool University, Lancaster University, Bangor University and Bolton University, Salford University and Keele University. I successfully secured secondment to the Research Department at Alder Hey Children’s NHS Trust for 5 years to support delivery of the ADNAT research programme.

This followed work completed for various bodies including:

2000-2010: Member of Medical Research Council's College of Experts (Health Services & Public Health Research Board).

October 2006 - 2007: Expert advisor on the update review of patient education models for type 2 diabetes to NHS R&D HTA programme.

January 2004- 2005: Expert advisor to Department of Health Patient Education Working Group, National Service Framework for Diabetes. Completed report published 2006.

December 2003 - 2006: Member of the Department of Health Workforce, Training and Education committee in the National Screening Programme for Diabetic Retinopathy.

May 2002 - 2004: Expert Advisor to Liverpool's Central PCT on integrated care pathways for people with diabetes.

February 2002 -July 2002: Expert advisor on the review of patient education models for diabetes to NHS R&D HTA programme. Completed NICE report published 2003.

February 2002 - May 2002: Contributor to the Joint DH/MRC Research Advisory Committee on Diabetes: Subgroup 5: Service Organisation and Delivery. Final Report published 2002.

January 2002 - June 2002: Expert advisor to Diabetes UK on the Government's Expert Patient Programme.

 

I also act as a referee for:

  • Research Councils
  • National Institute of Health Research (2008- present)
  • Diabetes UK Research Committee (2002-present)
  • Medical Research Council (MRC)

 

Journals

  • Health and Social Care in the Community journal
  • Patient Education and Counselling journal
  • Journal of Interprofessional Care
  • Medical Education
  • Diabetic Medicine

Published work

Selected publications

Development and psychometric testing of the online Adolescent Diabetes Needs Assessment Tool (ADNAT). World Biomedical frontiers, Obesity and Diabetes,  http://biomedfrontiers.org/diabetes-obesity-2015-1-21/ ISSN

Nwaneri C, Cooper H, Jones D, Agwu-Umahi O, Osho T. (2014) Measure of the Rate at which Mortality in Type 2 Diabetes Mellitus Occurs: Protocol for a Systematic Review. Acta Medica International, 1(2), 110-116.

Spencer J, Cooper H, Milton B. (2014) Type 1 diabetes in young people: the impact of social environments on self-management issues from young people’s and parents’ perspectives. Diabetes Care for Children and Young People, 2(2), 48-57.

Cooper H, Spencer J, Lancaster J, Titman A, Johnson M, Lwin R, Wheeler S. Development and psychometric testing of the online Adolescent Diabetes Needs Assessment Tool (ADNAT). Journal of Advanced Nursing, 2014; 70(2), 454–468. DOI: 10.1111/jan.12235

Nwaneri C, Cooper H, Bowen-Jones D. Mortality in Type 2 Diabetes Mellitus: magnitude of the evidence from a Systematic Review and Meta-analysis. British Journal of Diabetes and Vascular Disease, 2013; 13(4),192-207.  

Spencer J., Cooper H., Milton B. (2013) A qualitative phenomenological study exploring the lived experiences of young people (13-16 years) with Type 1 diabetes mellitus and their parents. Diabetic Medicine, 30(1), e17–e24.

Cooper H, Spencer J, Lancaster J, Johnson M, Lwin R. (2012) Perceptions of the Clinical Usefulness of the Adolescent Diabetes Needs Assessment Tool (ADNAT). Diabetes Care for Children and Young People, 1(2), 55-61.

Nwaneri C, Bowen-Jones D, Cooper H, Chikkaveerappa K, Afolabi A. (2012) Falling mortality rates in Type 2 diabetes mellitus in the Wirral Peninsula: a longitudinal and retrospective cohort population-based study. Postgraduate Medical Journal. Available from: http://pmj.bmj.com/content/early/2012/08/19/postgradmedj-2012-130877.full?eaf. DOI: 10.1136/postgradmedj-2012-130877

Spencer J., Cooper H. (2011) A multidisciplinary paediatric diabetes health care team: perspectives on adolescent care. Practical Diabetes International, 28(5), 210-14.

Spencer J., Cooper H., Milton B. (2010). Qualitative studies of Type 1 diabetes in adolescence: a systematic literature review. Pediatric Diabetes, 11(5), 364-375.

Cooper H. (2010). Learning in interprofessional teams: Guide Supplement 38.2 – Viewpoint. Medical Teacher, 32(5), 434-435. DOI:10.3109/01421590903505711.

Cooper H., Cooper J., Milton B. (2009). Technology-based approaches to patient education for young people living with diabetes: a systematic literature review. Pediatric Diabetes, 10, 474-483.

Cooper H., Geyer R. (2009). What can complexity do for diabetes management? Linking theory to practice. Journal of Evaluation in Clinical Practice, 15(4), 761-765. 15. ISSN 1356-1294.

Cooper H., Booth K., Gill G. (2008) A trial of empowerment-based education in type 2 diabetes – global rather than glycaemic benefits. Diabetes Research and Clinical Practice, 82,165-171. DOI:10.1016/j.diabres.2008.07.013.

Cooper H., Geyer R. (2008) Using ‘complexity’ for improving educational research in health care. Social Science and Medicine, 67, 177-182. DOI: 10.1016/j.socscimed.2008.03.041.

Cooper H. Spencer-Dawes E. (2006) Involving service users in interprofessional education narrowing the gap between theory and practice. Journal of Interprofessional Care, 20(6), 603-617. DOI: 10.1080/13561820601029767.

Cooper H., Spencer-Dawes E., McLean E. (2005) Beginning the process of teamwork: design, implementation and evaluation of an inter-professional education intervention. Journal of Interprofessional Care. 19(5), 492-508. DOI: 10.1080/13561820500215160.

Varga-Atkins T, Cooper H. (2005) Developing e-learning for interprofessional education: testing the waters. Telemedicine. 11 Suppl 1:102 – 104.

Cooper H, Braye S. Geyer R. (2004).Complexity and interprofessional education. Learning in Health and Social Care, 3(4), 179-189.

Carlisle C, Cooper H. (2004). “Do none of you talk to each other?” The challenges facing the implementation of interprofessional education. Medical Teacher, 26(6), 545-552. DOI: 10.1080/61421590410001711616.

Cooper H, Booth K, Gill G. (2003). Using combined research methods for exploring diabetes patient education. Patient Education and Counseling, 51: 45-52.

Cooper H, Booth K, Gill G. (2003). Patients’ perspectives on diabetes health care education. Health Education Research, 18(2): 191-206.

Watkins C, Gibbon B,Leathley M, Cooper H, Barer D. (2002). Performing Inter-professional research: the example of a Team Care Project. Nurse Researcher, 9(2): 29-48.

Cooper H, Booth K, Gill G. (2002). Diabetes education: the patient’s perspective. Journal of Diabetes Nursing, 6(3): 91-95.

Cooper H, Booth K, Fear S, Gill G. (2001). Lessons from chronic disease patient education. Patient Education and Counseling, 44: 107-117.

 

Books

Cooper H., Geyer R. (2007) Riding the Diabetes Roller Coaster: A New Perspective for Patients, Carers and Health Professionals. Oxford: Radcliffe Publishing.

Cooper H. (2010). Complexity science: perspectives on health care education. In Key concepts for educators in health care. London: Sage.

Cooper H. (2004). Educational Strategies for Improving Outcome. In Gill G. (ed.) Unstable and Brittle Diabetes.London:Taylorand Francis, Pp 249-270.

Cooper H. (2004). Chronic Illness: Empowering Patients for Self-Care in Diabetes. In:CarlisleC, Donovan T, Mercer D.(ed.) Interprofessional Education: An Agenda for Health Care Professionals.Salisbury: Mark Allan Ltd. Pp.97-112.

 

Published Abstracts, Letters etc.

Cooper H., Spencer J., Lancaster G., Johnson M., Lwin R., Wheeler S., Titman A., Didi M. (2013) Development and psychometric testing of the on-line Adolescent Diabetes Needs Assessment Tool (ADNAT Study). Diab. Med, 30 (suppl. 1), E9.

Nwaneri C, Bowen-Jones D, Cooper H. (2013) Screening for type 2 diabetes and population mortality over 10 years. The Lancet, 381 (9870 901 – 902. doi:10.1016/S0140-6736(13)60665-0.

Cooper H., Spencer J., Lancaster G., Johnson M., Lwin R., Wheeler S., Titman A., Didi M. Development of an Adolescent Diabetes Needs Assessment Tool (ADNAT Study). Diab. Med. 2012; 29 (suppl. 1); 104.

Cooper H., Spencer J., Edwards S., Johnson M., Lwin R., Lancaster G., Didi M. (2010) Development of an Adolescent Diabetes Needs Assessment Tool (ADNAT Study). Diabetic Medicine, 27 (suppl. 1): 118.

Kovandzic M., Cooper H. (2009) The landscape of complexity discourse in academic literature on diabetes mellitus relevant to primary care: discourse analysis and implications for practice. Swiss Medical Weekly, 139 (Suppl. 175): OP178.

Spencer, J., Cooper, H. and Milton, B. (2009) Parent-child relationships and adolescent independence for the self-management of Type 1 diabetes. Diabetic Medicine, 26 (suppl. 1): 187.

Cooper H, Spencer-Dawe (2007) Engaging with complexity in educational research. Diabetic Medicine, 24 (Suppl. 1), A57, pp17. Diabetes UK Education Award for outstanding contribution to the evaluation of education in diabetes care. URL: http://www.blackwell-synergy.com/doi/pdf/10.1111/j.1464-5491.2007.02125.x

Cooper H, Booth K, Gill G,CarlisleC. (2003). Educating the future workforce for diabetes management. Diabetologia, 46(Suppl. 2):A427, Abstract No.1248.

Cooper H, Booth K, Gill G. (2002). Maintaining the benefits of patient education: lessons learnt from research. Diabetic Medicine, 19 (suppl. 2).

Cooper H, Jones A. (2002). Connecting art to health care education: evaluation of a project with ethnic minority groups in Liverpool. Diabetic Medicine, 19 (suppl. 2): A90: 23.

Cooper H, Booth K, Fear S, Gill G. (2001). The Impact of empowerment-based education in Type 2 diabetes. Results of a randomised controlled trial.  Diabetic Medicine, 18 (suppl. 2): A16.

Gibbs T, Brown L, Cooper H. (2000). Clinical Practice II - Caring in the community: reflections on a new initiative bringing a community dimension to the medical curriculum. Maltese Electronic Journal of Health and Medicine.

Cooper H, Booth K, Fear S, Gill G. (1999). Randomised controlled trial of the diabetes “Look After Yourself” education programme. Diabetic Medicine, 16 (Suppl 1): 35.

 

Magazine Articles

Cooper H. and Harvey k. (2005). Why the edge of chaos is healthy. Research Intelligence, University of Liverpool, 26 November, pp 5.

Following an interview with Dr. Eleanor Kennedy, Head of Research Diabetes UK: Teenagers in control. Balance, 2010, 237, 333-337.

 Following an interview with Dr. Richard Elliott, Research Communications Officer with Diabetes UK: Funding our future. Balance, 2012, 237, 333-337

 

Contributions to Department of Health Publications

Department of Health/Medical Research Council. Current and Future Research in Diabetes.London: Stationary office/29397, 2002.

National Institute for Clinical Excellence Technology Appraisal Guidance 60. Guidance on the use of Patient-education models for diabetes. April 2003. Ref No. NO213/ ISBN: 184257-287-3.

Department of Health/DiabetesUK. Structured Patient Education in Diabetes. Report from the Patient Education Working Group. June 2005. Ref. 269106

 

Commissioned Reports

Cooper H, Sandland S, Zac-Williams D. Art Attack: An Evaluation of the Ethnic Diabetes Boxes. April, 1999.

Cooper H,CarlisleC, Watkins C, Gibbs T. Interprofessional Education: An Exploration of Its Potential for the Training of Undergraduate Health Professionals.UniversityofLiverpool, April 2000.

Cooper H. Spencer E. Interprofessional Education Phase I: Research Findings and Recommendations.UniversityofLiverpool, July 2004.

Cooper H. Spencer E. Interprofessional Education Phase II: Service User Involvement: Research Findings and Recommendations.UniversityofLiverpool, July 2005.

 

Selected conference papers

Cooper H., Spencer J., Lancaster G., Johnson M., Lwin R., Wheeler S., Titman A., Didi M. Development, Psychometric Testing & Evaluation of the Adolescent Diabetes Needs Assessment Tool.  Presentation and Poster. Diabetes UK Annual Professional Conference, ExCell, London. 11-13 March 2015

Cooper H. Invited speaker. Development, Psychometric Testing & Evaluation of the Adolescent Diabetes Needs Assessment Tool. West Midlands Paediatric Diabetes Network. October 1st 2014.

Cooper H. Invited speaker. Development, Psychometric Testing & Evaluation of the Adolescent Diabetes Needs Assessment Tool. North West DTC training in methodological innovations in child and infant research. Lancaster University, 29th September 2014. Presented by Gillian Lancaster (ADNAT statistician) in my absence.

Cooper H. Invited speaker. Development, Psychometric Testing & Evaluation of the Adolescent Diabetes Needs Assessment Tool.  North West paediatric diabetes Network. Haydock Park Racecourse, Merseyside. August 2014.

Cooper H. Invited speaker. Using the on-line adolescent diabetes needs assessment tool within the interprofessional clinical environment. Yorkshire and Humberside Paediatric Diabetes Meeting, Leeds. October 3rd 2013.

Cooper H., Spencer J., Lancaster G., Johnson M., Lwin R., Wheeler S., Titman A., Didi M. Development, Psychometric Testing & Evaluation of the Adolescent Diabetes Needs Assessment Tool.  Poster. Diabetes UK Annual Professional Conference, ACC Liverpool. 3-7 March 2014

Cooper H., Spencer J., Lancaster G., Johnson M., Lwin R., Wheeler S., Titman A., Didi M. Development of an Adolescent Diabetes Needs Assessment Tool (ADNAT Study). Poster. Diabetes UK Annual Professional Conference, Manchester conference Centre. 3-7 March 2013

Cooper H. (2012) Invited speaker. ADNAT study: Using the on-line adolescent diabetes needs assessment tool within the interprofessional clinical environment. Key note lecture. National Paediatric Meeting, Leeds plaza.

Cooper H. (2012) Invited speaker. ADNAT study: ADNAT study: Using the on-line adolescent diabetes needs assessment tool within the interprofessional clinical environment. Key note lecture. NHS Diabetes. East of England Paediatric Diabetes Network, Holiday Inn, Cambridge.

Cooper H. (2012) Invited speaker. ADNAT study: Development of an on-line adolescent diabetes needs assessment tool. Key note lecture.  NHS Diabetes. North West paediatric diabetes Network. Haydock Park Racecourse, Merseyside.

Cooper H., Spencer J., Lancaster G., Johnson M., Lwin R., Wheeler S., Titman A., Didi M. (March 2012) Development of an Adolescent Diabetes Needs Assessment Tool (ADNAT Study). Poster. Diabetes UK Annual Professional Conference, SECC, Glasgow.

Nwaneri C., Cooper H., Bowen-Jones D., Afolabi A. (2011) No excess mortality in type 2 diabetes in the Wirral peninsular, Northwest England. International Diabetes Federation, World Diabetes Congress, Dubai, United Arab Emirates.

Nwaneri C., Cooper H., Bowen-Jones D., Chikkaveerappa K., Ahmed O., Afolabi A. (2011) Survival time following diagnosis of type 2 diabetes mellitus.  International Diabetes Federation, World Diabetes Congress, Dubai, United Arab Emirates.

Nwaneri C., Cooper H., Bowen-Jones D., Afolabi A. (2011) Changing mortality patterns in the Wirral peninsular population with type 2 diabetes mellitus. International Diabetes Federation, World Diabetes Congress, Dubai, United Arab Emirates.

Nwaneri C., Bowen-Jones D., Cooper H., Chikkaveerappa K. (2011) Life expectancy following diagnosis of type 2 diabetes mellitus: a longitudinal and retrospective cohort population based study. International Diabetes Federation, World Diabetes Congress, Dubai, United Arab Emirates.

Cooper H., Spencer J., Edwards S., Johnson M., Lwin R., Lancaster G., Didi M. (2011). ADNAT study: Development of on-line adolescent diabetes needs assessment tool. British Sociological Association Medical Sociology Annual Conference, Chester University.

Cooper H., Spencer J., Edwards S., Johnson M., Lwin R., Lancaster G., Didi M. (2011) Poster: ADNAT study: Development of an on-line adolescent diabetes needs assessment tool. International Society for Pediatric and Adolescent Diabetes, Miami, USA.

Personal invitation: Cooper H., Spencer J., Edwards S., Johnson M., Lwin R., Lancaster G., Didi M. (2011) Workshop: ADNAT study: Development of an on-line adolescent diabetes needs assessment tool. International Diabetes Federation World Diabetes Congress, Dubai, United Arab Emirates.

Personal invitation: Cooper H. (2011) Development of the Adolescent Diabetes Needs Assessment Tool. Diabetes UK Major Supporters Event, Manchester Town Hall.

Personal invitation: Cooper H. (2011) Development of the Adolescent Diabetes Needs Assessment Tool. Diabetes UK Parent Network Day, Eirias Park Centre, Colwyn Bay, North Wales.

Spencer, J., Cooper, H., Milton, B. (2011) Applying interpretive phenomenology to the study of human complex systems: Type 1 diabetes management as an exemplar. British Sociological Association Annual Conference, London School of Economics.

Personal invitation: Cooper H., Spencer J., Edwards S., Johnson M., Lwin R., Lancaster G., Didi M. (2011) ADNAT study: Development of an on-line adolescent diabetes needs assessment tool. NIHR Medicines for Children’s Research Network fourth Annual Conference: sharing best practice on widening participation in children’s research, Manchester Conference Centre, Manchester.

Personal invitation: Diabetes Research Network, Liverpool. Cooper H., Spencer J., Edwards S., Johnson M., Lwin R., Lancaster G., Didi M. (2010) Development of an Adolescent Diabetes Needs Assessment Tool (ADNAT Study).

Spencer J., Cooper H., Milton B. (2010) Type 1 diabetes and adolescence: an exploration of lived experiences. Royal College of Nursing International Research Conference, SAGE, Gateshead, Newcastle.

Cooper H., Spencer J., Edwards S., Johnson M., Lwin R., Lancaster G., Didi M. (2010) Development of an Adolescent Diabetes Needs Assessment Tool (ADNAT Study). Royal College of Nursing International Research Conference, SAGE, Gateshead, Newcastle.

Cooper H., Spencer J., Edwards S., Johnson M., Lwin R., Lancaster G., Didi M. (2010) Development of an Adolescent Diabetes Needs Assessment Tool (ADNAT Study). Poster. Diabetes UK Annual Professional Conference, Liverpool Echo Arena.

Spencer J., Cooper H., Milton B. (2010) Type 1 diabetes and adolescence: an exploration of lived experiences. Poster. Diabetes UK Annual Professional Conference, Liverpool Echo Arena.

Cooper H., Spencer J., Edwards S., Johnson M., Lwin R., Lancaster G., Didi M. (2010) ADNAT study: the development of an adolescent diabetes needs assessment tool. NIHR Medicines for Children’s Research Network third Annual Conference 2009, Liverpool Echo Arena.